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RecruitingObservational
Registry for Patients With Desmoplastic Small Round Cell Tumor
NCT ID: NCT04690374Sponsor: Memorial Sloan Kettering Cancer CenterLast updated: 2026-01-12
Summary
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease. The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
Arms & interventions
Outcome measures
Primary
Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor
The aim of this study is the collection of data.
Time frame: 7 years
Eligibility criteria
Sex: AllAge: All agesHealthy volunteers: No
Inclusion Criteria:
* Participants must have a diagnosis of desmoplastic small round cell tumor
* Participants may be of any age as long as the appropriate consent and assent may be obtained
* Willing to provide historical and longitudinal clinical data
Exclusion Criteria:
* Participant unwilling to provide consent or share historical and longitudinal clinical data
Study locations (1)
Memorial Sloan Kettering Cancer Center (All Protocol Activities)
New York, New York, 10065
Emily Slotkin, MD · Principal Investigator