Highlighting Patients At Risk for Sensory Screening (HPARSS) to Enhance Sensory Deficit Screening in Childhood Cancer Survivors
Summary
The overall goal of this study is to attempt to overcome the organizational barriers that impede prompt screening for at-risk sensory deficits in childhood cancer survivors (CCS). Using a cross sectional design study, collaborators in the Informatics Research branch of the Institute of Informatics at the Washington University School of Medicine will identify CCS at risk for sensory deficits based upon their therapy exposure to generate the highlighting patients at risk for sensory screening (HPARSS) document. The investigators will utilize the HPARSS that will link therapy related risks for sensory deficits to specific screening procedures prompting the primary oncology provider to implement screening, diagnostic testing, and therapy.
Arms & interventions
- OtherHighlighting Patients at Risk for Sensory Screening (HPARSS)
Collaborators in the Informatics Research branch of the Institute of Informatics at the Washington University School of Medicine will identify CCS at risk for sensory deficits based upon their therapy exposure to generate the HPARSS document.
Outcome measures
Primary
Percentage of patients with at risk for sensory deficits identified by HPARSS
Time frame: Through completion of enrollment for all patients (estimated to be 9 months)
Percentage of at risk patients who fail the assigned screening test
Time frame: Through completion of enrollment for all patients (estimated to be 9 months)
Percentage of patients in need of referral for screen test results who participate in formal diagnostic testing and/or treatment
Time frame: Through 1 year after the completion of screening test for all participants (estimated to be 1 year and 9 months)
Secondary
Number and types of barriers to participation in formal diagnostic testing and therapy in CCS failing to engage in sensory screening
Time frame: At approximately 2 months following the patient's screening
Number and types of facilitators to participation in formal diagnostic testing and therapy in CCS failing to engage in sensory screening
Time frame: At approximately 2 months following the patient's screening
Acceptability of HPARSS as measured by the Acceptability of Intervention Measure (AIM)
Time frame: To be completed at the time of enrollment completion (approximately 9 months)
Feasibility of intervention as measured by Feasibility of Intervention Measure (FIM)
Time frame: To be completed at the time of enrollment completion (approximately 9 months)
Eligibility criteria
Study locations (1)
St. Louis Children's Hospital - Washington University School of Medicine
St Louis, Missouri, 63110