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RecruitingInterventional

Utilizing a Mobile App to Help Survivors of Childhood Cancer Navigate Long-Term Follow-Up Care

NCT ID: NCT05641961Sponsor: University of California, San FranciscoLast updated: 2025-07-23

Summary

This clinical trial studies the effectiveness of a newly developed survivorship mobile application (app) designed for survivors, or their caregivers, of childhood cancer to help them better navigate long-term follow-up care. The survivorship app provides survivors access to their treatment history and follow-up recommendations, improves knowledge of their diagnosis, treatment, risks, and recommended follow-up care by using a message notification. The ability to quickly connect and establish care planning may enhance adherence to recommended follow-up.

Detailed description

PRIMARY OBJECTIVE: I. To determine the difference in survivor/caregiver knowledge and understanding of diagnosis, treatment information, and follow-up needs using the survivorship app. SECONDARY OBJECTIVE: I. To validate the usability and effectiveness of the survivorship mobile application. OUTLINE: Participants are seen in the survivorship clinic and receive education about potential late effects and the survivorship application on study. Participants then use the survivorship app for 4 months on study.

Arms & interventions

  • BehavioralSurvivorship mobile application

    Mobile phone application

  • OtherQuestionnaires

    Questionnaires assessing cancer knowledge and system usability will be delivered to participants via Survivorship App

Outcome measures

Primary

  • Change in knowledge questionnaire score

    The knowledge of the participant will be measured using a 12-item questionnaire that assesses the awareness of their treatment and health issues in four categories: (1) diagnosis, (2) treatment, (3) risks, and (4) recommended follow-up. A scoring system has been devised which will give a score to each questionnaire out of 100 possible points. The change in participants knowledge scores \>=20 points from baseline will be reported.

    Time frame: Up to 4 months

Secondary

  • System usability scale (SUS) score > 68

    Time frame: Up to 2 months

Eligibility criteria

Sex: AllAge: All agesHealthy volunteers: Yes
Inclusion Criteria: * Survivors of childhood cancer attending Survivorship Clinic at University of California, San Francisco (UCSF) OR caregivers of a childhood cancer survivor attending Survivorship Clinic at UCSF. * Must have a mobile device (smartphone or smart-tablet) with service plan. * Must have ability to read, write, and understand English language. Exclusion Criteria: * An individual who does not meet any of the criteria mentioned above will be excluded from participation in this study.

Study locations (1)

University of California, San Francisco

San Francisco, California, 94143

Recruiting
Patricia Murphy, RN · Contact
415-476-2700Patricia.Murphy@ucsf.edu
Robert Goldsby, MD · Principal Investigator