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RecruitingObservational

The PCOS Challenge Study: For the Collection of Information to Advance Research and Improve Care for PCOS Patients

NCT ID: NCT05797909Sponsor: PCOS Challenge: The National Polycystic Ovary Syndrome AssociationLast updated: 2023-04-04

Summary

The primary purpose of The PCOS Challenge Study will be to conduct high-quality research where patients are included in the design, and answering the questions that patients identify as important to their lived experience with PCOS. In partnership with clinical investigators, patients will work on the development and management of data collection, the research agenda, and the sharing of research findings. The PCOSC Study will promote the advancement of research that provides reliable, useful, and meaningful information to patients with PCOS and their clinicians. The population for The PCOS Challenge Study will include individuals with a clinical diagnosis of PCOS, individuals self-diagnosed with PCOS, individuals with symptoms of PCOS (e.g., hirsutism, irregular menstrual cycles), and demographic-matched controls without PCOS.

Arms & interventions

Outcome measures

Primary

  • Information

    Such as responses to survey questions

    Time frame: One Year

Eligibility criteria

Sex: FemaleAge: 12 Years to 80 YearsHealthy volunteers: Yes
Inclusion Criteria: * Diagnosed with PCOS by a health professional, self-diagnosed with PCOS or individuals with PCOS symptoms * Willing to sign the consent form * Able to understand the registry surveys or what is being asked Exclusion Criteria: * Unable to understand the surveys or what is being asked * Unwilling to sign the consent form

Study locations (1)

PCOS Challenge: The National Polycystic Ovary Syndrome Association

Bethesda, Maryland, 20817

Recruiting
Sasha Ottey, MHA, MT (ASCP) · Contact
The PCOS Challenge Study | Cancerify