RecruitingObservational

Development of a Culturally Tailored Digital Resilience-Building Intervention for East Asian Immigrants With Cancer to Facilitate Advance Care Planning Discussions

NCT ID: NCT06035549Sponsor: University of Illinois at ChicagoLast updated: 2026-02-18

Summary

The purpose of the study is to develop a culturally tailored digital resilience-building intervention to help East Asian immigrants engage in advance care planning discussions with their family caregivers.

Detailed description

Advance care planning (ACP) is a process to facilitate decision-making for future care and document values and preferences. However, the advance directive completion rates in East Asian Americans are low, which may extend to disparities in end-of-life care, including rates of hospice use and prevalence of unwanted aggressive treatments. To address this, this study uses information technology to develop a culturally tailored digital resilience-building intervention with and for East Asian immigrants to help them engage in ACP discussions. There are two aims of this study: (1) Conduct semi-structured interviews with a total of 30 religious leaders to identify the barriers and facilitators associated with discussing ACP and death-related topics with immigrants from China/Taiwan, Japan, and Korea and (2) Develop a culturally tailored digital resilience-building intervention using think-aloud interviews with 27 pairs of East Asian immigrants with cancer and their family caregivers (9 pairs each for immigrants from China/Taiwan, Japan, and Korea).

Arms & interventions

BehavioralCulturally Tailored Digital Resilience-Building
The Culturally Tailored Digital Resilience-Building materials include an introduction to advance care planning and resilience skills that specifically address cultural beliefs and barriers.
BehavioralSemi-structured interviews
Semi-structured interviews with religious leaders who provide spiritual care to Asian Americans/immigrants.

Outcome measures

Primary

Usability
Use the System Usability Scale (range: 0-100) to assess the usability of the intervention. Higher scores indicate greater perceived usability by users.
Time frame: Immediately at the end of the think-aloud interview

Secondary

Acceptability
Time frame: Immediately at the end of the think-aloud interview

Eligibility criteria

Sex: AllAge: 18 Years to 80 YearsHealthy volunteers: No

Inclusion Criteria for Religious Leaders: * Age ≥ 18 years * Serving as a chaplain or religious leader at a healthcare setting or religious organization * Having experience providing pastoral or spiritual care to Chinese, Japanese, and Korean Americans in the US * Being able to read and respond to questions in English, Mandarin, Cantonese, Japanese, or Korean. Exclusion criteria: Not willing to provide consent. Inclusion Criteria for Patients: * Age ≥ 18 years * Having a cancer diagnosis * Likely self-identifying as a Chinese, Japanese, or Korean American/immigrant * Being able to read and respond to questions in either English, Mandarin, Japanese, Korean, or Chinese dialects, such as Cantonese, Shanghai, Taishanese, or Taiwanese. Exclusion Criteria for Patients: * Having cognitive impairment per the Short Portable Mental Status Questionnaire with more than three errors Inclusion Criteria for Family Caregivers: * Age ≥ 18 years * Being able to read and respond to questions in either English, Mandarin, Japanese, Korean, or Chinese dialects, such as Cantonese, Shanghai, Taishanese, or Taiwanese * Having a family member who is likely to self-identify as a Chinese, Japanese, or Korean American/immigrant and has been diagnosed with cancer

Study locations (1)

University of Illinois Chicago

Chicago, Illinois, 60607

Recruiting

Li-Ting H. Longcoy · Contact

312-996-3024 liting@uic.edu