RecruitingObservational

Long-term Outcomes Associated With Juvenile-onset Mycosis Fungoides and Lymphomatoid Papulosis

NCT ID: NCT06207812Sponsor: M.D. Anderson Cancer CenterLast updated: 2026-01-26

Summary

To follow up with all our participants with juvenile-onset mycosis fungoides, check on their status, and ask them or their parents about long term outcomes associated with their condition.

Detailed description

Primary Objective -To characterize the long-term outcomes associated with juvenile-onset mycosis fungoides (jMF) and lymphomatoid papulosis (lyp). The study will consider metrics such as 5-year and 10-year overall survival, and overall disease activity. Secondary objective -To characterize treatments and associated comorbidities.

Outcome measures

Primary

Safety and adverse events (AEs)
Incidence of Adverse Events, Graded According to National Cancer Institute Common Terminology Criteria for Adverse Events (NCI CTCAE)
Time frame: Through study completion; an average of 1 year

Eligibility criteria

Sex: AllAge: 18 Years and olderHealthy volunteers: No

Inclusion Criteria: -To be eligible, participants had to be diagnosed with jMF or lyp before age 20. In the case of participants below the age of 18, parents and not the children will be contacted for participation (children are exempt from participation as their parents may answer our study questions). Exclusion Criteria: -Participants older than 20 years of age at diagnosis

Study locations (1)

MD Anderson Cancer Center

Houston, Texas, 77030

Recruiting

Julia Dai, MD · Contact

713-515-7961 jdai6@mdanderson.org

Julia Dai, MD · Principal Investigator