Adolescents and Young Adults With Cancer: Their Preferred Involvement in Decision Making
Summary
The purpose of this mixed-methods study is to determine Adolescent and Young Adult (AYAs) decision making preferences post cancer diagnosis using vignettes designed to assess their preferred involvement in decisions about their cancer treatment and variables associated with these treatment decision-making (TDM) preferences.
Arms & interventions
- BehavioralClinical Decision-Making Scenarios and Preferences Assessment
Participants complete a socio-demographic questionnaire and decision-making preferences scale, including hypothetical clinical scenarios, to identify their preferred decision-making role (active, collaborative, or passive) and the influence of providers or family. Delivered electronically via secure link; reminders sent as needed.
Outcome measures
Primary
Distribution of Decision-Making Roles in Clinical Scenarios
Proportion of participants who select an active, collaborative, or passive role in hypothetical clinical decision-making scenarios. Each role will be counted and compared across participant subgroups.
Time frame: Within 2 weeks of survey link delivery
Secondary
Association Between Sociodemographic Characteristics and Decision-Making Role
Time frame: At time of electronic survey completion
Concordance Between Interview Responses and Scenario-Based Decision-Making Roles
Time frame: At time of interview, within 4 weeks of survey completion
Correlation Between Healthcare Encounters and Decision-Making Role Preference
Time frame: At time of interview, within 4 weeks of survey completion
Eligibility criteria
Study locations (1)
Stanford University
Palo Alto, California, 94304