UNderstanding The Experience of Ovarian Cancer Life After Diagnosis (UNTOLD) Study
Summary
The goal of this study is to comprehensively measure ongoing concerns and unmet needs of individuals living with ovarian cancer. To accomplish this, the UNderstanding The experience of Ovarian cancer - Life after Diagnosis (UNTOLD) study will be conducted using a mixed-methods approach. Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences. Up to 40 survivors will be subsequently identified to complete a follow-up interview. To ensure these sample sizes, along with a representative sample, a combined recruitment strategy will be employed using the California Cancer Registry (population-based) and recruitment through ovarian cancer advocacy groups.
Arms & interventions
Outcome measures
Primary
Supportive Care Needs
Composite Supportive Care Needs Survey - Short Form (SCNS-SF34) score minimum: 34, maximum: 170; continuous score; presented as mean and standard deviation.
Time frame: Day 1
Secondary
Quality of Life - Average FACT general total score
Time frame: Day 1
Eligibility criteria
Study locations (1)
Masonic Cancer Center
Minneapolis, Minnesota, 55455