A Community-Engaged Approach to Culturally Adapting an Intervention to Increase Uptake of Genetic Testing Among African American Cancer Survivors
Summary
The goal of this clinical trial is to culturally adapt an educational genetic counseling intervention to increase the uptake in genetic counseling and testing among African Americans at risk for heredity cancers. With the help of community stakeholders and clinical genetic professionals the investigators will: * adapt and refine a culturally relevant online educational genetic counseling program for at-risk African Americans * Test the effects of the educational program * collaborate with community leaders and clinical genetic professionals to translate study findings, develop a road map for dissemination to the community, and identify barriers to prepare for future trials. Participants from Detroit Research on Cancer Survivor group will be offered enrollment. Once consent is obtained, questionnaires will be completed before an online genetic counselling intervention immediately after, and at 3 months
Arms & interventions
- BehavioralCulturally adapted Online Genetic Counseling and Testing Information
Testing the effects of the educational intervention designed to increase the uptake of genetic counseling testing among at-risk African American survivors
Outcome measures
Primary
Uptake of genetic counseling and genetic testing
One item question will ask whether participants have participated in genetic counseling and genetic testing (Yes or No)
Time frame: 3 month follow Up
Secondary
Intention to undergo genetic counseling and testing
Time frame: 1 day Pre Intervention to 1 day Post Intervention
Sharing Your Results
Time frame: 3 month follow up
Major Experiences of Discrimination
Time frame: 1 day prior to intervention
Everyday Experiences of Discrimination
Time frame: 1 day prior to intervention
Interpersonal Processes of Care Survey
Time frame: 1 day prior to intervention
Group-Based Medical Mistrust Scale
Time frame: 1 day prior to intervention
Perceived Access to Health Care Services
Time frame: 1 day prior to intervention
Perceived risk of carrying genetic mutation
Time frame: 1 day Pre Intervention to 1 day Post Intervention
Attitudes about genetic counseling and testing
Time frame: 1 day Pre Intervention to 1 day Post Intervention
Behavioral beliefs about genetic counseling
Time frame: 1 day Pre Intervention to 1 day Post Intervention
Perceived norms
Time frame: 1 day Pre Intervention to 1 day Post Intervention
Knowledge of Genetic Counseling
Time frame: 1 day Pre Intervention to 1 day Post Intervention
Perceived self-Efficacy
Time frame: 1 day Pre Intervention to 1 day Post Intervention
Multidimensional Impact of Cancer Risk Assessment
Time frame: 3 month Follow Up
Cancer Family Impact
Time frame: 3 Month Follow Up
Eligibility criteria
Study locations (1)
Karmanos Cancer Institute
Detroit, Michigan, 48201